Wednesday, 16 July 2008

'Dear God, What Is Happening to My Body?'...



As some of you already know, I have been meeting and working with special children of various disabilities, some with progressive conditions (like little Naqib, who had Muscular Dystrophy), for about 3 years now. But the one thing which I can never figure out is 'the future'. Go ahead, laugh, cos obviously no one can figure it out either ;)...


But seriously speaking, what will happen to these children?



I was reading an article about Michael J. Fox just today. Anybody remember MJF? He was the cute pint-sized guy from the 'Back to the Future' series, 'Spin City', and who voiced 'Stuart Little'.




Anybody remember what happened to him?

He was diagnosed with Parkinson's Disease in 1991, and declared it publicly in 1998, before quiting full-time acting in 2000.



Which brings me back to the question of what happens...



Look at MJF. He has all the money in the world, enough to get the best care and treatment in the world, and even to start a Micheal J. Fox Foundation for Parkinson's Research, and yet, from his few-guest appearances on some television shows, his "illness was evident".

The point here is this: No matter how rich or powerful you are, or how much good/bad you have done, a disease/illness is non-discriminatory. You can't run away from the progress of the condition...


What about people who don't have that kind of money, which is most people?




I know a lot of people are going to come out and say, oh God will be there for you, trust that God has a reason, you have to be strong, be patient, etc etc etc.



But did anyone ever think that perhaps the patients themselves are sick and tired of hearing all this, which they perhaps hear every single day? Well-intention as we are, it doesn't take into account the actual situation or how much illnesses can rob a person of the life he/she wanted. They're probably even angry at God Himself...*Sorry God*




After all, it is a loss. Can any of you imagine how sad it is to lose control of your own body, or having it become something you don't recognise anymore, or wonder why it is doing what it is doing?


After all, how many of you wake up in the morning, and say: Oh gee, I wonder how well my body will behave today?


I'm guessing not many...


But for people like MJF, and lot of other people out there, this is a question they ask everyday.





A video of Michael J. Fox...




I'm leaving you with a video of MJF. It's not the verbal message I'm asking you to look at (although yes, I support Stem Cell Research 100%), but rather look at what has happened to the body of someone we are all familiar with...


You know, it can happen to anyone of us...




PS: Do share your experiences if you have any...And if you have no experiences, your thoughts will do just fine =)


24 comments:

Salt & Turmeric said...

ingatkan apa dah jadi to daphne's body! :P

i kno wht u mean when ppl keeps saying things like god this and god that, to ppl in pain or agony. im sure god has His reason but when we'r dealing with someone in pain/agony/sad, sometimes keeping our mouth shuts and just be there for them is enough. sometimes all tht they wanna do is venting out. ;)

Anonymous said...

Daphne I came by your blog from MMs and have been reading for the past hour. Ihis piece really strikes me. You have written a piece which makes us think from the perspective of the person with the illness. Thank you for helping us see the other other side.
I think that is what makes you good at what you do which is to reach out to children and people in need: YOU PUT YOURSELF IN THEIR SHOES.
(Shanta)

Raden Galoh said...

Daphne Darling...

I'm lost for words actually... you write apiece worth pondering sis... for me, i just need a hug... kindda agree with farina too..

Kerp (Ph.D) said...

this reminds me of another famous PD sufferer- Mohd Ali aka Cassius Clay. but in his case, it could well be as a result from years taking blows and punches on the head.

Anonymous said...

Daphne you made me cry again. If I ever need to feel human just have to come to your blog and I will feel more human than I can wish. You always remind me in your own way without saying, to stop and smell the flowers. Thank u dear.

Akmal said...

All I can say is; we are human. No matter how it is, we are always susceptible to such misfortunes. Money can buy everything? Nah.
Nice piece daph.

Mlle Monster said...

Having worked with children who were severely physically and mentally challenged too, I have asked the same question. I was a volunteer at a hospital and my charges were abandoned children at that. For many of such cases, there is no future. Hospital beds, restraints, physical therapy, well meaning nurses and the odd visitor made up the only world they knew. In many ways they are really the unfortunates not only because of their disabilities but also how they have been let down by society and shut away because they remind us of our own failure to make the bigger choices that would benefit humanity and not our selfish interests.

Like you, I too am a huge supporter of stem cell research. Great post and do continue your good work. God bless.

Ydiana said...

Hi Daphne

Micheal J Fox, one of my favorite actor since school. Its sad that he's suffering from Parkinson at so early age of his life.

I am no expert, but there are nutrients to help prevent getting parkinson at a later age, such as B Complex, E with Lecitin, Ginseng, C, Calcium and Magnesium.

Jo-D said...

Daphe, I never know how to work with people who is upset so I stay away from them. I am scared I will say the wrong thing which will make the situation very much worse.

sharlydia said...

Like i always said...i really admire ur strength & consistency working with these illed pple...

sometimes we may not know wat's god's intension or plan for some happenings, but can only pray about it. I once was in the same situation when i met the accident (which u may have read from my blog), and i almost died. i doubted god too! but looking back at the incident, i guess my life has changed tremendously...

Daphne Ling said...

Hey Kak Farina,

You said it very well! I agree whole-heartedly with what you said...

I also agree with the venting-out thing, as I think it must be pretty natural, right?

Daphne Ling said...

Hey Anon 11:17 @ Shanta,

Hi, and thanks for coming by and leaving a comment...

Thank you also for your very flattering (and not-very deserving) compliment...

They always say that we can only do stuff if we walk in someone else's shoes...They pinch ok? ;)

Daphne Ling said...

Hi Aunty Dalilah,

*Hugs* to you, as many as you need and as long as you need them...=)

You hang in there ok, and remember to hang on with platinum fingers like discussed ok?

Will wing a prayer to you...

*Hugs*

Daphne Ling said...

Hey Kerp,

I thought that Mohammad Ali was diagnosed with Pugilistic Parkinson's Syndrome?

That means it was definitely related in some way to his boxing?

Hmmm...I could be wrong...I dunno! *Lol*

Daphne Ling said...

Hey Anon 12:29,

Thanks for coming by, and leaving a comment, but aiyo, why lar cry-cry?

I really don't start out trying to make people teary-eyed lar...;(

Do stop and smell the flowers from time to time...Just make sure you have alot of antihistamine in hand if you have a history of horrible allergies like me ;)

*Lol*

Daphne Ling said...

Hi Akmal,

Yeap, we're most definitely human, and nobody is 'safe' from all these problems...

Well said, Akmal dear!

And agreed too, that money can't buy everything...

Daphne Ling said...

Hi Mlle Monster,

Hey, thanks for that comment!

You know, reading that comment, I feel like I'm reading my own thoughts! It's so uncanny and deja-vu'ish I tell you...*Shudder*

You said everything I feel! I also strongly feel that "In many ways they are really the unfortunates not only because of their disabilities but also how they have been let down by society and shut away because they remind us of our own failure to make the bigger choices that would benefit humanity and not our selfish interests"...

Wow...

You're right...The greatest societies are not the ones with the most money, but those who remember the people everyone else has forgotten...

I know some people will say I sound like a broken tape recorded because I've said this over and over, but hey, I strongly believe in it...

Again, thanks for sharing the thought...=)

Daphne Ling said...

Hi Kak Diana,

Haha, I'm no expert either lar...*Lol*...

We hear about all these herbs preventing everything under-the-sun, but if we follow all right, can die oh...

They're sooooo many in the market!

I guess the best thing is to drink plenty of fluids (ahem, water), exercise regularly, eat in moderation, get plenty of quality sleep, and be at peace with oneself...

Haha...Broken tape recorder again!

Daphne Ling said...

Hey Jo-D,

I guess nobody ever really knows what to say...And even when it happens to your own friends, you don't know what to say...

And even when it's your own best friend, you don't know what to say...

I guess the most important thing is to be there...

I guess...

Daphne Ling said...

Hey Sharlydia,

Yes, I've read about your accident a while ago.

I think everybody doubts God every once in a while, no? But then we go back to Him, and I think that whole 'questionning' makes us more firm in believe...

I speak for myself lar...

By the way, glad you're alive and ok...=) *Hugs*

Dalam Dakapan Ibu said...

Daphne,
I saw MJF video last night.. tried to add the comment but Blogger was out. Really meaning to tell you - that video of his made me sad.

I had tears watching him. He was one of my fav actors when I was younger. I remember watching Back to the Future on the cable when I was in CA90804 for like 20 times. In fact I met him once when he came to my Univ with some fellow actors during the pre-US Presidential election. Whether he was a young Republican or Democrat, that I can't remember. What I remember was that he was darn cute and full of life...

And I never knew he's changed THAT much...

Puteri said...

Daphne, two of my friends suffer from fibromyalgia. Some days are so bad that they can't even get out of bed.

Whenever I see them, I am just happy that they can even move about. I never ask them how bad the pain is for them, because if they were to describe it, I would never be able to imagine it.

For us with able bodies, be thankful and learn to take care of them because we have but one body.

Daphne Ling said...

Hey DDI,

Gosh, wow, you've actually met him?!? That's so cool!

I knew he was diagnosed with Parkinson's, but I didn't keep track of his progress. Only recently, I came across a report on him, and thought I'd see what has happened to him.

It's sad, isn't it? You start of your adult years with so much promise, and suddenly, this happens...

I do wish things had been different for MJF...

Daphne Ling said...

Hi Kak Puteri,

Yes, I've heard of Fibromyalgia and the pain it comes with. It's sad, isn't it?

More so when there are still some quarters who think of Fibromyalgia (and Myalgic Excephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)) as a psychological/stressed-up condition...

I guess the most we can do is to never pooh-pooh people's experiences with illnesses, and to give our help whenever we can...